Huntington's disease, also known as Huntington disease, Huntington's chorea, chorea major, sometimes abbreviated as HD, is a neurodegenerative genetic disorder that is the most common genetic cause of repetitive abnormal movements called chorea.from wikipedia
today it was revealed that someone i know is leaving their career because they have been diagnosed with hd. there is very little i can actually say about the sheer incredulity that has shrouded my head and as well as the rest of our circle.
i have some experience with terminal diagnoses and yet the remain an enigma. there is not a concrete way that i am aware of to breathe in the toxic shock and shame that the words "you have ..... and the prognosis is negative"
i feel for my friend. i am at a loss for words. i cannot begin to understand how another with transmute this truth. but i am reminded of my helplessness and my own limits. and i more easily turn to prayer.
and there is more relevance to the phrase "one day at a time"
Helpless, helpless, helpless
Baby can you hear me now?
The chains are locked
and tied across the door,
Baby, sing with me somehow.
i just love the version of today's sound choice... patti smith's helpless
